| Title | Personal genome research : what should the participant be told? |
| Publication Type | Journal Article |
| Year of Publication | 2010 |
| Authors | McGuire, AL, Lupski, JR |
| Journal | Trends Genet |
| Volume | 26 |
| Issue | 5 |
| Pagination | 199-201 |
| Date Published | 2010 May |
| ISSN | 0168-9525 |
| Keywords | Data Interpretation, Statistical, Genetic Variation, Genome, Human, Humans, Sequence Analysis, DNA, Truth Disclosure |
| Abstract | Should the results of whole genome sequencing research be disclosed to participants, in particular when the results have uncertain or indeterminate phenotypic consequences? This controversial question is considered in light of one author's (J.L.) experience as a geneticist who recently had his own genome sequenced. |
| DOI | 10.1016/j.tig.2009.12.007 |
| Alternate Journal | Trends Genet |
| PubMed ID | 20381895 |
| PubMed Central ID | PMC2868334 |
| Grant List | R01NS058529 / NS / NINDS NIH HHS / United States R01 HG004853 / HG / NHGRI NIH HHS / United States R01HG004853 / HG / NHGRI NIH HHS / United States R01 NS058529 / NS / NINDS NIH HHS / United States R01 HG004853-01A1 / HG / NHGRI NIH HHS / United States |